On the tip of my tongue - talking about Aphasia
Jonathan Hirons's journey following his stroke and diagnosis of aphasia is both inspiring and informative. Here’s a summary of his experience and insights about aphasia:
Jonathan's Experience with Aphasia
1. Initial Incident:
In January 2019, while in a business meeting, Jonathan began to feel strange and soon realized he could not communicate effectively. His colleagues quickly called for medical help.
2. Medical Emergency:
He was rushed to University College Hospital, where scans revealed he had suffered a stroke due to a bleed on the brain. He spent five nights in the hospital and was diagnosed with aphasia.
3. Impact on Daily Life:
- Jonathan struggled with basic tasks such as speaking, reading, and writing.
- He had memory issues, recalling only his postcode but not his full address or other personal information.
- He faced challenges in understanding spoken language but could still sign his name.
4. Support from Family:
His wife, Ann, played a crucial role in his recovery:
- She encouraged him to read aloud daily and used flashcards to aid in word recognition and writing.
- This early intervention was vital for his rehabilitation.
5. Progress Through Therapy:
With the help of speech therapy, Jonathan made significant improvements:
- He regained much of his ability to read and write, although he still experiences difficulties, especially when tired.
6. Advocacy and Awareness:
- Jonathan has turned his experiences into a creative outlet by producing films, including "On the Tip of My Tongue" and "What is Aphasia?" These films aim to educate others about aphasia and its challenges.
- He actively shares his story to raise awareness about aphasia as a hidden disability and the ongoing need for support beyond initial rehabilitation.
Understanding Aphasia
Aphasia is a language disorder that affects communication abilities, including:
- Speaking: Difficulty in forming words or sentences.
- Understanding: Challenges in comprehending spoken or written language.
- Reading and Writing: Problems with reading text or writing coherently.
Key Takeaways
- Aphasia is often a result of brain damage, commonly from strokes, and can significantly impact daily life.
- Early intervention and support are crucial for recovery.
- Awareness and education about aphasia can help reduce stigma and improve support for those affected.
Jonathan's story highlights the resilience of individuals facing such challenges and the importance of community support in their recovery journey.
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Episodes
AI and Aphasia: Overcoming Communication Barriers - S3 Ep 8 with Jez Hodgkinson
On the tip of my tongue Series 3 Episode 7 - "Therapy Notes: Elizabeth Nightingale"
International Aphasia Awareness Campaign with Claire Bennington
Robert Baldock's Voice of Recovery, Music and Aphasia
Life in the key of Aphasia - Graham Hall
The Aphasia Awareness Month Special
Navigating Conversations with Aphasia: Insights from Iain Stansfield
Dan's Journey: Triumph Over Aphasia
Breaking Barriers: Disability Awareness and Inclusion with Sarah Petherbridge
Resilience and Recovery: Talia Lazarus' Inspiring Journey
Brain Injury and Returning to Work - Tamsin Keyes of Headway
Bring on the nouns - Graham Hall's take on Aphasia
Overcoming Aphasia - Nigel Cheffers-Heard and Paula Fernley
Emma Rich: Battling Aphasia and Advocating for Neuro Rehab
Hidden Voices: Reflections on Aphasia and Care 2024 Round up
Lifting the Fog: Colin Lyall's Journey with Aphasia
On the tip of my tongue Series 2 Episode 5 - Colin Lyall founder of Say Aphasia
"Inside Speech Therapy with Derek Munn"
Better Conversations with Aphasia with Dr Suzanne Beeke
Life, Aphasia, and Leadership - Pete Coady, Say Aphasia Darlington
Tom's Journey: Brain Injury and Recovery - Tom Ryan-Elliott
On the tip of my tongue: Series 1 Episode 6 - What we have learned so far...
Understanding Mental Health: Is It Just Health? - with Dr Trevor Powell
On the tip of my tongue : Series 1 Episode 4 - Carers with Ann Hirons