On the tip of my tongue - talking about Aphasia
Jonathan Hirons's journey following his stroke and diagnosis of aphasia is both inspiring and informative. Here’s a summary of his experience and insights about aphasia:
Jonathan's Experience with Aphasia
1. Initial Incident:
In January 2019, while in a business meeting, Jonathan began to feel strange and soon realized he could not communicate effectively. His colleagues quickly called for medical help.
2. Medical Emergency:
He was rushed to University College Hospital, where scans revealed he had suffered a stroke due to a bleed on the brain. He spent five nights in the hospital and was diagnosed with aphasia.
3. Impact on Daily Life:
- Jonathan struggled with basic tasks such as speaking, reading, and writing.
- He had memory issues, recalling only his postcode but not his full address or other personal information.
- He faced challenges in understanding spoken language but could still sign his name.
4. Support from Family:
His wife, Ann, played a crucial role in his recovery:
- She encouraged him to read aloud daily and used flashcards to aid in word recognition and writing.
- This early intervention was vital for his rehabilitation.
5. Progress Through Therapy:
With the help of speech therapy, Jonathan made significant improvements:
- He regained much of his ability to read and write, although he still experiences difficulties, especially when tired.
6. Advocacy and Awareness:
- Jonathan has turned his experiences into a creative outlet by producing films, including "On the Tip of My Tongue" and "What is Aphasia?" These films aim to educate others about aphasia and its challenges.
- He actively shares his story to raise awareness about aphasia as a hidden disability and the ongoing need for support beyond initial rehabilitation.
Understanding Aphasia
Aphasia is a language disorder that affects communication abilities, including:
- Speaking: Difficulty in forming words or sentences.
- Understanding: Challenges in comprehending spoken or written language.
- Reading and Writing: Problems with reading text or writing coherently.
Key Takeaways
- Aphasia is often a result of brain damage, commonly from strokes, and can significantly impact daily life.
- Early intervention and support are crucial for recovery.
- Awareness and education about aphasia can help reduce stigma and improve support for those affected.
Jonathan's story highlights the resilience of individuals facing such challenges and the importance of community support in their recovery journey.
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On the tip of my tongue - talking about Aphasia
On the tip of my tongue Episode 5 - Dr Trevor Powell - Trailer
Intertwined Realities: Neuropsychology, Mental Health, and Walking Football
In this episode, Dr. Trevor Powell, a consultant clinical neuropsychologist, discusses the interrelation between physical and mental health. He elaborates on his work in Berkshire's neuropsychology service, covering head injuries, dementia, and neurodiverse conditions. Dr. Powell addresses the societal misconception of mental health as separate from physical health and highlights the importance of psychological processes in overall health. He also reflects on his career path influenced by his father's dementia and his involvement with the charity Headway. Additionally, the discussion explores the role of cognitive rehabilitation and social activities like walking football in maintaining brain health. The conversation concludes with practical advice on keeping the brain healthy through physical and mental activities.
00:00 Introduction to Dr. Trevor Powell
00:45 Mental Health vs. Physical Health
03:48 Understanding Neuropsychology
04:59 Joe Biden and Cognitive Insight
07:35 Journey into Neuropsychology
11:03 Language Functions and Aphasia
15:50 Walking Football and Mental Health
18:16 Conclusion and Brain Health Tips
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This podcast is funded by https://www.bas.org.uk
To watch Jonathan’s film: https://tipofmytonguefilm.com
http://x.com/buffaloloungeuk
https://www.linkedin.com/in/jonathanhirons/
The Tavistock Trust for Aphasia website
http://aphasiatavistocktrust.org
